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A Happy Finale for Wishes for William
Appropriately during Valentine’s week, we gave a piece of our heart to
William Johnson and his family. (William has Spinal Muscular Atrophy (SMA), a
disease of the anterior horn cells. SMA affects the voluntary muscles for activities
such as crawling, walking, head and neck control and swallowing. It mainly affects
the proximal muscles.)
Back in November, the Johnson family told us of their plans to build an addition
to the first floor of their home in order to create an accessible bedroom and
bathroom for William. They also needed to add an accessible entrance to the house
for William. In addition, there were several other items needed for William including
a new van with a lift. The family was very overwhelmed to say the least.
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Scalliwags approached the Johnsons and asked if it would
be okay to select William as their Child of the Month. Scalliwags contributed
a percentage of their profits together with donations collected from Scalliwags’
patrons. In the interim, Scalliwags’ marketing firm, A-Type
Design & Marketing, told William’s story to AmRamp
of Boston. Julian Gordon, the President of AmRamp
and Mike Bruzzini, Account Executive, were touched by William’s story
and generously agreed to donate a ramp for William so that he could have easy
access to his home.
To commemorate the beginning of the project, Scalliwags had
a little celebration for William. After playing in the arcade
and using his tickets to buy a samurai sword, William good-naturedly
posed for photos and then enjoyed some pizza. The Johnsons
expect to commence the renovation project early spring.
“I am very touched that you were willing to include
William and our family in your charitable giving. It’s all
so overwhelming to know that there are wonderful people
out there willing to help us,” exclaimed William’s
mother Heidi.
For more information about William,
visit:
www.wishesforwilliam.org
On Sunday, June 13 at the Boston Harbor
Walk to benefit The Floating Hospital for Children. Our team, Team Mito,
is committed to raising funds for Mitochondrial Disease and we hope that
you can
help us to reach our goal.
It was a great day. Scalliwags raised
$1000 for Team mito. The team was over 208 strong and raised
$33,114.05. Scalliwags received special mention as being
the biggest team at the walk. Everyone did a great job at
spreading the word about mito & metabolic disorders
in children.
On February 26,
Scalliwags was proud to present the Jimmy Fund with a check
for $2,000. We want to thank everyone who donated to this
important cause.
l-r, Bryn Conklin of the Jimmy Fund, Owners Tony Gemma and
Sheila Farragher-Gemma (and Scalli) Children l-r: Jessica,
Laura, Lexi and Aisling
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